Tag Archives: Red Skin Syndrome

What 1 year of my daughter’s TSW has taught me

So, my husband and I have spent the last year watching our daughter go from a beautiful, energetic, athletic, friendly child to an introverted, recluse to somewhere in between.  She is clearly on her way to getting back to herself … Continue reading

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TSW Month 12

One Year down.  One FUCKING Year of HELL!  I know that I should be thankful for the progress that I have seen in my daughter’s skin.  I should be thankful that she will be cured and that this isn’t a … Continue reading

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Photo History of My Little Red Warrior

I remember how much pictures helped me at the beginning of my daughter’s topical steroid withdrawal.  I remember seeing the first pictures on ITSAN.org and just knew this was what we were dealing with.  I would look at before and … Continue reading

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TSW Month 7

Month 7 has brought my daughter a lot more energy.  She has been on the trampoline almost daily.  By the middle of month 7 she was jumping several times a day for over a half hour each time.  This of … Continue reading

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In month 5 of Topical Steroid Withdrawal, things started to change a tiny bit for the better.  I will not fool you by saying that things were great, or even good.  Things sucked!  However, they sucked a little less than … Continue reading

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Candida Eater

In the summer of 2012 we started our 8 1/2 year old daughter on the anti-candida diet.  So, the list below shows some of the foods she could NOT eat. Cheese, Ice Cream, Margarine, Enriched Pasta, Walnuts, Apples, Blackberries, Blueberries, Cantaloupe, … Continue reading

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Topical Steroid Withdrawal Round 1

The summer of 2012 we decided to stop using all topical steroids on our 8 1/2 year old daughter.  The topical steroids were no longer working and our frustration was at an all time high.  Since the medical community was … Continue reading

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